{"id":12912,"date":"2025-11-19T13:25:14","date_gmt":"2025-11-19T13:25:14","guid":{"rendered":"https:\/\/xstorynews.com\/?p=12912"},"modified":"2025-11-19T13:25:14","modified_gmt":"2025-11-19T13:25:14","slug":"the-moment-he-saw-his-newborn-baby-this-father-froze-and-the-only-words-he-could-whisper-were-its-bad","status":"publish","type":"post","link":"https:\/\/xstorynews.com\/?p=12912","title":{"rendered":"The moment he saw his newborn baby, this father froze \u2014 and the only words he could whisper were, \u201cIt\u2019s bad.\u201d"},"content":{"rendered":"<header id=\"mvp-post-head\" class=\"left relative\">\n<div id=\"ezoic-pub-ad-placeholder-901\" data-creator=\"qubit\" data-ez-name=\"under_page_title\">\n<div>\n<div id=\"google_ads_iframe_\/23058280356,22520566134\/dailypositiveinfo_com-box-3_0__container__\"><\/div>\n<\/div>\n<\/div>\n<\/header>\n<section id=\"mvp-content-main\" class=\"post-15742 post type-post status-publish format-standard has-post-thumbnail hentry category-off-the-record\">\n<div class=\"code-block code-block-6\">\n<div id=\"ezoic-pub-ad-placeholder-102\"><\/div>\n<\/div>\n<p><strong>Jennie Wilklow claimed that everything went \u201cseemingly perfect\u201d during the September 2017 C-section delivery of her daughter Anna. But in a second, everything shifted.<\/strong><\/p>\n<div class=\"code-block code-block-3\">\n<div id=\"ezoic-pub-ad-placeholder-122\"><\/div>\n<\/div>\n<p><strong>The 16-month-old is said to have been born with a disease that caused her skin to split open shortly after birth.<\/strong><\/p>\n<div class=\"code-block code-block-7\">\n<div id=\"ezoic-pub-ad-placeholder-103\"><\/div>\n<\/div>\n<p><strong>\u201cMoments after her skin hit the air it began to harden and then split causing open wounds all over her body,\u201d<\/strong> she told <a href=\"https:\/\/people.com\/human-interest\/baby-takes-many-baths-skin-crack-harden\/\">People<\/a>. <strong>\u201cFor months her skin had been building up but now out of the womb it became dry and hard, like armor.\u201d<\/strong><\/p>\n<div class=\"code-block code-block-22\">\n<div id=\"ezoic-pub-ad-placeholder-123\"><\/div>\n<\/div>\n<p><strong>\u201cThe doctors and nurses were visibly shaken, and my husband sat silently in the post-op room,\u201d<\/strong> she added.<\/p>\n<p>According to the National Organization for Rare Disorders (NORD), the medical community quickly determined that Anna suffered from <a href=\"https:\/\/rarediseases.org\/rare-diseases\/ichthyosis-harlequin-type\/\">Harlequin ichthyosis<\/a>, a rare skin ailment characterized by the presence of thick scales of skin on newborns. About one in every 500,000 people has it.<\/p>\n<p>Wilklow wrote to INSIDER that a diagnosis was made an hour after Anna was born and that she spent her first month of life in a hospital.<\/p>\n<p><iframe id=\"instagram-embed-0\" class=\"instagram-media instagram-media-rendered\" src=\"https:\/\/www.instagram.com\/p\/BtM9rNtAIgH\/embed\/?cr=1&amp;v=14&amp;wp=540&amp;rd=https%3A%2F%2Fdailypositiveinfo.com&amp;rp=%2Fa-baby-girl-who-never-stops-smiling-is-living-with-a-rare-skin-condition-that-makes-her-skin-crack%2F%3Ffbclid%3DIwY2xjawOKpHZleHRuA2FlbQIxMABicmlkETF4c0NjMnJqWE5zZzBOR0dmc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMD#%7B%22ci%22%3A0%2C%22os%22%3A1520%2C%22ls%22%3A484%2C%22le%22%3A1498%7D\" height=\"694\" frameborder=\"0\" scrolling=\"no\" allowfullscreen=\"allowfullscreen\" data-instgrm-payload-id=\"instagram-media-payload-0\" data-mce-fragment=\"1\"><\/iframe><\/p>\n<p><strong>\u201cMy reaction was just complete shock because just a few minutes before I thought I was having a perfectly healthy baby girl,\u201d<\/strong> she told INSIDER. <strong>\u201cIt\u2019s the kind of moment that stays with you forever and reminds you every day just how precious life is.\u201d<\/strong><\/p>\n<div class=\"code-block code-block-9\">\n<div id=\"ezoic-pub-ad-placeholder-105\">\n<div>\n<div id=\"google_ads_iframe_\/23058280356,22520566134\/dailypositiveinfo_com-box-4_0__container__\"><\/div>\n<p><span class=\"ezoic-ad\" data-ez-name=\"dailypositiveinfo_com-box-4\"><span id=\"div-gpt-ad-dailypositiveinfo_com-box-4-0\" class=\"ezoic-ad\" data-google-query-id=\"CMmEspGo_pADFSWKgwcd8jwgVg\"><\/span><span class=\"reportline\" data-nosnippet=\"\" data-ez-ph-owner-id=\"\"><span class=\"ezoicwhat\"><img decoding=\"async\" title=\"ezoic\" src=\"https:\/\/go.ezodn.com\/utilcave_com\/ezoicbwa.png\" alt=\"Ezoic\" name=\"?pageview_id=822aa9d7-e210-46e0-4802-4c3d3a45b46b&amp;ad_position_id=105&amp;impression_group_id=dailypositiveinfo_com-box-4\/2025-11-19\/7429718174666610&amp;ad_size=336x280&amp;domain_id=454286&amp;url=https:\/\/dailypositiveinfo.com\/a-baby-girl-who-never-stops-smiling-is-living-with-a-rare-skin-condition-that-makes-her-skin-crack\/\" \/><\/span><\/span><\/span><\/div>\n<\/div>\n<\/div>\n<p>According to the Genetic and Rare Disease Information Center (GARD), mutations in the ABCA12gene, which provides instructions for manufacturing a protein essential for proper skin cell growth, are the underlying cause of Harlequin ichthyosis.<\/p>\n<p>Affected individuals receive two copies of the defective gene, one from each parent.<\/p>\n<div class=\"code-block code-block-11\">\n<div id=\"ezoic-pub-ad-placeholder-106\">\n<div>\n<div id=\"google_ads_iframe_\/23058280356,22520566134\/dailypositiveinfo_com-banner-1_0__container__\"><\/div>\n<p><span class=\"ezoic-ad\" data-ez-name=\"dailypositiveinfo_com-banner-1\"><span id=\"div-gpt-ad-dailypositiveinfo_com-banner-1-0\" class=\"ezoic-ad\" data-google-query-id=\"CLCSjJGo_pADFaKIgwcds3QHRg\"><\/span><span class=\"reportline\" data-nosnippet=\"\" data-ez-ph-owner-id=\"\"><span class=\"ezoicwhat\"><img decoding=\"async\" title=\"ezoic\" src=\"https:\/\/go.ezodn.com\/utilcave_com\/ezoicbwa.png\" alt=\"Ezoic\" name=\"?pageview_id=822aa9d7-e210-46e0-4802-4c3d3a45b46b&amp;ad_position_id=106&amp;impression_group_id=dailypositiveinfo_com-banner-1\/2025-11-19\/3358481998657211&amp;ad_size=300x250&amp;domain_id=454286&amp;url=https:\/\/dailypositiveinfo.com\/a-baby-girl-who-never-stops-smiling-is-living-with-a-rare-skin-condition-that-makes-her-skin-crack\/\" \/><\/span><\/span><\/span><\/div>\n<\/div>\n<\/div>\n<p>The infant\u2019s skin is thick and scaled from birth. According to NORD, a baby may have trouble breathing and feeding due to the tightness of their skin, which can also cause their lips and eyelids to turn inside out from being pulled on.<\/p>\n<p>Babies born with Harlequin ichthyosis are more likely to be premature and to experience health problems like infection, dehydration, and respiratory distress.<\/p>\n<div class=\"code-block code-block-13\">\n<div id=\"ezoic-pub-ad-placeholder-107\">\n<div>\n<div id=\"google_ads_iframe_\/23058280356,22520566134\/dailypositiveinfo_com-large-leaderboard-2_0__container__\"><\/div>\n<p><span class=\"ezoic-ad\" data-ez-name=\"dailypositiveinfo_com-large-leaderboard-2\"><span id=\"div-gpt-ad-dailypositiveinfo_com-large-leaderboard-2-0\" class=\"ezoic-ad\" data-google-query-id=\"CPPLjJGo_pADFe-HgwcddlUQYw\"><\/span><span class=\"reportline\" data-nosnippet=\"\" data-ez-ph-owner-id=\"\"><span class=\"ezoicwhat\"><img decoding=\"async\" title=\"ezoic\" src=\"https:\/\/go.ezodn.com\/utilcave_com\/ezoicbwa.png\" alt=\"Ezoic\" name=\"?pageview_id=822aa9d7-e210-46e0-4802-4c3d3a45b46b&amp;ad_position_id=107&amp;impression_group_id=dailypositiveinfo_com-large-leaderboard-2\/2025-11-19\/4749299030626307&amp;ad_size=300x250&amp;domain_id=454286&amp;url=https:\/\/dailypositiveinfo.com\/a-baby-girl-who-never-stops-smiling-is-living-with-a-rare-skin-condition-that-makes-her-skin-crack\/\" \/><\/span><\/span><\/span><\/div>\n<\/div>\n<\/div>\n<p>According to the NORD, the thick skin scales fall off over the first several weeks of life.<\/p>\n<p>According to People\u2019s report, in the past, kids born with this disease had a low chance of survival. According to the <a href=\"https:\/\/www.firstskinfoundation.org\/types-of-ichthyosis\/harlequin-ichthyosis\">Foundation for Ichthyosis and Related Skin Types (FIRST)<\/a>, improved neonatal care has increased survivability, and <strong>\u201cseveral\u201d<\/strong> people with Harlequin ichthyosis are now living into their thirties. However, not all babies born with the disease make it.<\/p>\n<div class=\"code-block code-block-14\">\n<div id=\"ezoic-pub-ad-placeholder-108\">\n<div>\n<div id=\"google_ads_iframe_\/23058280356,22520566134\/dailypositiveinfo_com-leader-1_0__container__\"><\/div>\n<p><span class=\"ezoic-ad\" data-ez-name=\"dailypositiveinfo_com-leader-1\"><span id=\"div-gpt-ad-dailypositiveinfo_com-leader-1-0\" class=\"ezoic-ad\" data-google-query-id=\"CMOFjZGo_pADFYKhgwcdt_Q71Q\"><\/span><span class=\"reportline\" data-nosnippet=\"\" data-ez-ph-owner-id=\"\"><span class=\"ezoicwhat\"><img decoding=\"async\" title=\"ezoic\" src=\"https:\/\/go.ezodn.com\/utilcave_com\/ezoicbwa.png\" alt=\"Ezoic\" name=\"?pageview_id=822aa9d7-e210-46e0-4802-4c3d3a45b46b&amp;ad_position_id=108&amp;impression_group_id=dailypositiveinfo_com-leader-1\/2025-11-19\/5237313182617400&amp;ad_size=300x250&amp;domain_id=454286&amp;url=https:\/\/dailypositiveinfo.com\/a-baby-girl-who-never-stops-smiling-is-living-with-a-rare-skin-condition-that-makes-her-skin-crack\/\" \/><\/span><\/span><\/span><\/div>\n<\/div>\n<\/div>\n<p><iframe id=\"instagram-embed-1\" class=\"instagram-media instagram-media-rendered\" src=\"https:\/\/www.instagram.com\/p\/BzuC0qbAdJz\/embed\/?cr=1&amp;v=14&amp;wp=540&amp;rd=https%3A%2F%2Fdailypositiveinfo.com&amp;rp=%2Fa-baby-girl-who-never-stops-smiling-is-living-with-a-rare-skin-condition-that-makes-her-skin-crack%2F%3Ffbclid%3DIwY2xjawOKpHZleHRuA2FlbQIxMABicmlkETF4c0NjMnJqWE5zZzBOR0dmc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMD#%7B%22ci%22%3A1%2C%22os%22%3A1524%2C%22ls%22%3A484%2C%22le%22%3A1498%7D\" height=\"748\" frameborder=\"0\" scrolling=\"no\" allowfullscreen=\"allowfullscreen\" data-instgrm-payload-id=\"instagram-media-payload-1\" data-mce-fragment=\"1\"><\/iframe><\/p>\n<p>The skin is red and can be coated in thin scales once the thick scales that were present at birth have fallen off.<\/p>\n<p>Emollients, which help keep the skin moist and prevent cracks that can lead to infection, are recommended by the NORD for the treatment of these chronic problems.<\/p>\n<div class=\"code-block code-block-15\">\n<div id=\"ezoic-pub-ad-placeholder-109\"><\/div>\n<\/div>\n<p>According to <a href=\"https:\/\/people.com\/human-interest\/baby-takes-many-baths-skin-crack-harden\/\">People<\/a>, Wilklow bathes Anna for two hours many times a day and applies Aquaphor, a healing ointment, to her skin every few hours to prevent her skin from splitting.<\/p>\n<p>Because her body creates so much extra skin, Anna needs to eat roughly 2,100 calories every day, according to People\u2019s story.<\/p>\n<div class=\"code-block code-block-18\">\n<div id=\"ezoic-pub-ad-placeholder-117\"><\/div>\n<\/div>\n<p><strong>\u201cI decided to stop work and stay home with her full time to give her everything she needs and I couldn\u2019t be happier with my decision,\u201d<\/strong> Wilklow told People. <strong>\u201cShe has a lot of challenges, but she never complains so neither do I.\u201d<\/strong><\/p>\n<p>According to People, a family friend started a <a href=\"https:\/\/www.gofundme.com\/f\/t6ag8d-hope-for-anna\">GoFundMe<\/a> to collect money for Anna\u2019s medical needs after Wilklow quit her job to care for her. Over $10,000 has been contributed as of this writing.<\/p>\n<div class=\"code-block code-block-19\">\n<div id=\"ezoic-pub-ad-placeholder-118\">\n<div>\n<div id=\"google_ads_iframe_\/23058280356,22520566134\/dailypositiveinfo_com-large-mobile-banner-1_0__container__\"><\/div>\n<p><span class=\"ezoic-ad\" data-ez-name=\"dailypositiveinfo_com-large-mobile-banner-1\"><span id=\"div-gpt-ad-dailypositiveinfo_com-large-mobile-banner-1-0\" class=\"ezoic-ad\" data-google-query-id=\"CMnOsZGo_pADFTePgwcdNSAlBg\"><\/span><span class=\"reportline\" data-nosnippet=\"\" data-ez-ph-owner-id=\"\"><span class=\"ezoicwhat\"><img decoding=\"async\" title=\"ezoic\" src=\"https:\/\/go.ezodn.com\/utilcave_com\/ezoicbwa.png\" alt=\"Ezoic\" name=\"?pageview_id=822aa9d7-e210-46e0-4802-4c3d3a45b46b&amp;ad_position_id=118&amp;impression_group_id=dailypositiveinfo_com-large-mobile-banner-1\/2025-11-19\/6178518920595472&amp;ad_size=336x280&amp;domain_id=454286&amp;url=https:\/\/dailypositiveinfo.com\/a-baby-girl-who-never-stops-smiling-is-living-with-a-rare-skin-condition-that-makes-her-skin-crack\/\" \/><\/span><\/span><\/span><\/div>\n<\/div>\n<\/div>\n<p>Anna has won the hearts of tens of thousands of people online. The family keeps up an Instagram account (username: <a href=\"https:\/\/www.instagram.com\/harlequindiva\/\">A Baby Girl Who \u2018Never Stops Smiling\u2019 Is Living With A Rare Skin Condition That Makes Her Skin Crack<\/a>) with over 24,000 followers, and a Facebook page (named <strong>\u201c<a href=\"https:\/\/www.facebook.com\/hopeforanna\/\">Hope for Anna<\/a>\u201c<\/strong>) with 48,000 likes.<\/p>\n<p>There are pictures and videos of Anna eating, playing, and smiling on every page. Other pictures show Anna\u2019s skincare routine and the symptoms she experiences with her skin.<\/p>\n<div class=\"code-block code-block-20\">\n<div id=\"ezoic-pub-ad-placeholder-119\">\n<div>\n<div id=\"google_ads_iframe_\/23058280356,22520566134\/dailypositiveinfo_com-large-mobile-banner-2_0__container__\"><\/div>\n<p><span class=\"ezoic-ad\" data-ez-name=\"dailypositiveinfo_com-large-mobile-banner-2\"><span id=\"div-gpt-ad-dailypositiveinfo_com-large-mobile-banner-2-0\" class=\"ezoic-ad\" data-google-query-id=\"COCwwJGo_pADFQ2JgwcdQ2Ax1A\"><\/span><span class=\"reportline\" data-nosnippet=\"\" data-ez-ph-owner-id=\"\"><span class=\"ezoicwhat\"><img decoding=\"async\" title=\"ezoic\" src=\"https:\/\/go.ezodn.com\/utilcave_com\/ezoicbwa.png\" alt=\"Ezoic\" name=\"?pageview_id=822aa9d7-e210-46e0-4802-4c3d3a45b46b&amp;ad_position_id=119&amp;impression_group_id=dailypositiveinfo_com-large-mobile-banner-2\/2025-11-19\/7855772504639299&amp;ad_size=300x250&amp;domain_id=454286&amp;url=https:\/\/dailypositiveinfo.com\/a-baby-girl-who-never-stops-smiling-is-living-with-a-rare-skin-condition-that-makes-her-skin-crack\/\" \/><\/span><\/span><\/span><\/div>\n<\/div>\n<\/div>\n<p>Wilklow told INSIDER that she created the <strong>\u201cHope for Anna\u201d<\/strong> page while Anna was still in the NICU shortly after her delivery.<\/p>\n<p><iframe id=\"instagram-embed-2\" class=\"instagram-media instagram-media-rendered\" src=\"https:\/\/www.instagram.com\/p\/BzRGoA3gH8O\/embed\/?cr=1&amp;v=14&amp;wp=540&amp;rd=https%3A%2F%2Fdailypositiveinfo.com&amp;rp=%2Fa-baby-girl-who-never-stops-smiling-is-living-with-a-rare-skin-condition-that-makes-her-skin-crack%2F%3Ffbclid%3DIwY2xjawOKpHZleHRuA2FlbQIxMABicmlkETF4c0NjMnJqWE5zZzBOR0dmc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMD#%7B%22ci%22%3A2%2C%22os%22%3A1526%2C%22ls%22%3A484%2C%22le%22%3A1498%7D\" height=\"883\" frameborder=\"0\" scrolling=\"no\" allowfullscreen=\"allowfullscreen\" data-instgrm-payload-id=\"instagram-media-payload-2\" data-mce-fragment=\"1\"><\/iframe><\/p>\n<p><strong>\u201cI started [it] mainly to update my incredible community and not to flood my personal page,\u201d<\/strong> she told INSIDER. <strong>\u201cIt turned into much more than that when I shared a side by side video [showing Anna when] she was in the hospital and the other was a few months later. The hospital video went viral, but something about Anna\u2019s soul has touched people from the very moment she opened her eyes.\u201d<\/strong><\/p>\n<\/section>\n","protected":false},"excerpt":{"rendered":"<p>Jennie Wilklow claimed that everything went \u201cseemingly perfect\u201d during the September 2017 C-section delivery of her daughter Anna. But in a second, everything shifted. The 16-month-old is&#8230; <\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-12912","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"a3_pvc":{"activated":false,"total_views":0,"today_views":0},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The moment he saw his newborn baby, this father froze \u2014 and the only words he could whisper were, \u201cIt\u2019s bad.\u201d - X Story News<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/xstorynews.com\/?p=12912\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The moment he saw his newborn baby, this father froze \u2014 and the only words he could whisper were, \u201cIt\u2019s bad.\u201d - X Story News\" \/>\n<meta property=\"og:description\" content=\"Jennie Wilklow claimed that everything went \u201cseemingly perfect\u201d during the September 2017 C-section delivery of her daughter Anna. But in a second, everything shifted. 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